Mainframeguy
Debiant by way of Ubuntu
- Joined
- 29 Aug 2002
- Messages
- 3,763
OK folks - please bear with me and keep in mind although I am a coder I am no PHP nor XHTML whizz ATM.
I am really sort of hoping folks at the forum will do a little handholding if I do this but of site design from scratch, or maybe recommend something like googlepages as appropriate. I have a friend who introduced me to a good friend of hers with MS, that is the background. I am aiming to help her in some fundraising - see below:-
and thus far I have simply replied with the following....
I wondered what input folks here may have? I'm especially interested in pay links and the simplest ways to set them up - having often seen them on various pages for charitable purposes.
Who knows, maybe OSNN could design a really nice page for her with all the info and linkage needed and pimp it a little and put out logo and a link in a corner for some good Karma? But I do realise co-operative design has it's limitations. I'm no designer - you can see the level I am at when you check my homepage :s
I am really sort of hoping folks at the forum will do a little handholding if I do this but of site design from scratch, or maybe recommend something like googlepages as appropriate. I have a friend who introduced me to a good friend of hers with MS, that is the background. I am aiming to help her in some fundraising - see below:-
Exeter woman needs help to raise fee to pay for MS treatment in Holland
Agneta Mills is hoping that the revolutionary stem cell treatment will help repair damage caused by multiple sclerosis.
She read about Jan Wilks remarkable stem cell treatment in Rotterdam for her MS in the news, who had been wheel chair bound, but within days of treatment was walking again. Since then several stories have appeared in the national papers about people with MS who have traveled to Europe for the treatment, with fantastic results.
Diagnosed in 2001, her condition has deteriorated to the point where she now never leaves the house without elbow crutches, wheel chair or her mobility scooter.
Multiple Sclerosis (MS) is a chronic, unpredictable neurological disease that affects the central nervous system. Damage done by scarring (sclerosis) can slow or block the nerve signals that control muscle coordination, strength, sensation and vision.
The treatment, which cost £14,000, is not available in the UK and uses stem cells from otherwise discarded umbilical cords which are injected into the blood stream. These have a remarkable potential for both self-renewal and differentiation into cell types with a specialized function, such as muscle, blood or brain cells. They replace the diseased cells with healthy cells taken from stem cells. The umbilical cords have been donated by mothers of healthy new born babies.
Agneta has been accepted for the treatment, at the private clinic in Rotterdam in September 2006. The company Advance Cell Therapeutics (ACT) has offered Agneta the stem cell treatment at a reduced rate of £8,000, as she has had to give up work due to MS and is now unemployed.
The treatment is not a cure, but it has a good chance of giving her a better quality of life.
ACT is a biotech company specializing in stem cell therapies. Their clinic in Holland has already relieved the symptoms of dozens of MS patients.
Agneta's family has set up the Agneta Mills Appeal Fund to help raise the £8,000 needed towards the cost of the treatment. A number of fundraising events are in the pipeline including a sponsored 5 mile walk, music evenings, a letter box event and a 30 mile roller blade marathon across London.
To make a donation or take part in the events, please send cheques – payable to The Agneta Mills Appeal Fund...
and thus far I have simply replied with the following....
Agneta
....I'll try to get back to you with a link to something for you to tell me if it looks about right. I'll try to find a way to make it for your eyes only at first, then when you say OK we could transfer it to a place to be online.
One thing you might wish to do in the meantime is think about if you want to register an (internet) address. I have used https://registerfly.com/index.php myself and have had http://www.namezero.com/index.php recommended to me (I have some troubles with registerfly's redirection service and they got my details wrong on first registration which was annoying to fix!). Either site has the easy option to search, so you can simply see, say, if www.agnetamills.net is already "taken". Once you find one that is as suitable and "catchy" or easy to remember as you can manage, it is straightforward to buy it. This is something I cannot do for you even if I wanted to, there are strict laws about it because of identity theft and web squatting issues. Let me know how you go with this or if you have any questions or problems. This part does not take long to do and eventually we shall make your name point to where I have put your pages with (hopefully) a link for people to donate directly (I really have not looked into that part yet!).
Another thing you may or may not want to consider is if you want any pictures or cross linking in whatever we do. Pictures need not be of you, could be of your son roller blading for example. Links I am thinking about could be to the place offering treatment, or to research and case studies in public domain that explain a little of what you are undertaking, perhaps? I know it has had media coverage, but we probably need to take the base view of someone coming along who is totally unawares, that way we hopefully may appeal at some level to every visitor.
Hopefully from here on our email communication will be straightforward now - notice that this address is (yet again) different to the one Wendy had also! Best to make this the primary one probably - so long as it works for you also. Hope this has given you something to stay busy with for additional input to the eventual page(s). Feel free to pass my email address along also to anyone who may wish to submit anything on your behalf....
I wondered what input folks here may have? I'm especially interested in pay links and the simplest ways to set them up - having often seen them on various pages for charitable purposes.
Who knows, maybe OSNN could design a really nice page for her with all the info and linkage needed and pimp it a little and put out logo and a link in a corner for some good Karma? But I do realise co-operative design has it's limitations. I'm no designer - you can see the level I am at when you check my homepage :s